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Attitudes about principle of autonomy in Hispanic patients from a dynamic early rheumatoid arthritis cohort

Virginia Pascual-Ramos1, Irazú Contreras-Yáñez2, Daniel Ruiz2

  • 1Department of Immunology and Rheumatology. Instituto Nacional de Ciencias Médicas y Nutrición Salvador Zubirán, Belisario Domínguez, Ciudad de México, México. virtichu@gmail.com.

Clinical and Experimental Rheumatology
|January 9, 2019
PubMed

Insights

Hispanic rheumatoid arthritis patients often exhibit limited knowledge autonomy, suggesting a paternalistic dynamic in their healthcare relationships. This highlights a need for improved patient education and empowerment in clinical decision-making.

Area of Science:

  • Rheumatology
  • Medical Ethics
  • Health Psychology

Background:

  • Rheumatoid arthritis (RA) management requires active patient participation.
  • Understanding patient autonomy and knowledge is crucial for effective shared decision-making.

Purpose of the Study:

  • To investigate the attitudes and knowledge of RA patients regarding the principle of autonomy in healthcare decisions.
  • To assess patient knowledge autonomy (KA) in a cohort of recent-onset RA patients.

Main Methods:

  • A cross-sectional study was conducted on 143 RA patients from an established cohort.
  • A 4-dimensional questionnaire assessed knowledge autonomy (KA), with specific focus on patient rights and physician recommendations.
  • Statistical analyses included Mann-Whitney U-tests and logistic regression.

Main Results:

  • 35.6% of patients demonstrated poor knowledge autonomy (KA).
  • Older age was associated with better KA (OR: 0.97).
  • Patients more strongly agreed with statements about their rights (86.7%) than those challenging physician recommendations (58%).

Conclusions:

  • Hispanic RA patients' sense of autonomy indicates a degree of paternalism in the physician-patient relationship.
  • Findings suggest a gap between patient understanding of rights and their willingness to question medical advice.
Abstract

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