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Initial development of Supportive care Assessment, Prioritization and Recommendations for Kids (SPARK), a symptom

Sadie Cook1, Emily Vettese1, Dilip Soman2

  • 1Program in Child Health Evaluative Sciences, The Hospital for Sick Children, Peter Gilgan Centre for Research and Learning, 686 Bay Street, Toronto, Ontario, M5G 0A4, Canada.

BMC Medical Informatics and Decision Making
|January 12, 2019
PubMed

Insights

We developed SPARK, a web app for pediatric cancer patients to screen symptoms and access care guidelines. The tool is user-friendly and understandable for children, paving the way for clinical use.

Area of Science:

  • Pediatric Oncology
  • Digital Health
  • Clinical Informatics

Background:

  • Supportive care is crucial for children undergoing cancer treatment.
  • A need exists for accessible tools to manage symptoms and access care guidelines.
  • The Supportive care Prioritization, Assessment and Recommendations for Kids (SPARK) application was developed to address these needs.

Purpose of the Study:

  • To describe the initial development and evaluation of the SPARK web application.
  • To assess SPARK's usability and understandability from the perspective of pediatric cancer patients.
  • To refine SPARK based on user feedback.

Main Methods:

  • SPARK was developed and evaluated in three phases: low-fidelity (functionality), design (aesthetics), and high-fidelity (confirmed functionality and design).
  • Cognitive interviews were conducted with 90 children (ages 8-18) receiving cancer treatment.
  • Iterative design changes were guided by a Review Panel and user feedback.

Main Results:

  • Iterative refinements improved SPARK's navigation, usability, and likability.
  • In high-fidelity testing, 100% of children could complete symptom screening and interpret reports.
  • 100% found SPARK easy to use, and 90% found the reports easy to understand.

Conclusions:

  • SPARK is a usable and understandable web application suitable for research.
  • The application effectively facilitates symptom screening and access to supportive care information for pediatric cancer patients.
  • Future work will focus on the clinical implementation of SPARK.
Abstract

Keywords:
OncologyPediatric cancerSelf-reportSupportive careSymptom screeningWebsite development

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