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Updated: Jan 30, 2026
06:52
Reconstruct Human Retinoblastoma In Vitro
Published on: October 11, 2022
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Parental coping with retinoblastoma diagnosis
Maxwell J Gelkopf1,2, Trillium E Chang1,3,4, Yan Zhang5,6
1a Department of Ophthalmology & Vision Sciences , The Hospital for Sick Children , Toronto , Canada.
Journal of Psychosocial Oncology
|January 12, 2019
Summary
Parents of children with retinoblastoma experience significant distress, with anxiety and depression linked to coping mechanisms. Social support and self-efficacy are crucial for mitigating these challenges in pediatric cancer care.
Area of Science:
- Pediatric Oncology
- Psychosocial Oncology
- Health Psychology
Background:
- Retinoblastoma, a childhood eye cancer, presents unique challenges for parents.
- Understanding parental coping and distress is vital for effective psychosocial support.
Purpose of the Study:
- To characterize coping and distress in parents of children with retinoblastoma.
- To examine the association between parental distress and health literacy, self-efficacy, and social support.
Main Methods:
- A cross-sectional study was conducted with 104 parents of children with retinoblastoma in China.
- Validated questionnaires assessed demographic information, cancer coping, anxiety, depression, health literacy, self-efficacy, and social support.
- Bivariate correlation analysis was used to examine relationships between variables.
Main Results:
- Over half of parents (59.2%) experienced moderate anxiety, and a high percentage (77.7%) reported low, moderate, or high depression.
- Anxiety and depression were positively correlated with helplessness and anxious preoccupation.
- Perceived self-efficacy and social support from a partner showed negative correlations with distress and helplessness.
Conclusions:
- Parental distress, including anxiety and depression, is prevalent in retinoblastoma care.
- Self-efficacy and partner social support are protective factors against parental distress.
- These findings highlight the need for targeted psychosocial interventions for parents of children with retinoblastoma.
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