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Development of Pediatric Eye Questionnaires for Children With Eye Conditions

Sarah R Hatt1, David A Leske1, Yolanda S Castañeda2

  • 1Department of Ophthalmology, Mayo Clinic, Rochester, Minnesota, USA.

American Journal of Ophthalmology
|January 18, 2019
PubMed

Insights

New Pediatric Eye Questionnaires (PedEyeQ) were developed to measure functional vision and eye-related quality of life (ER-QOL) in children with various eye conditions.

Area of Science:

  • Ophthalmology
  • Pediatric Health
  • Psychometrics

Background:

  • Assessing quality of life and functional vision in children with eye conditions is crucial for comprehensive care.
  • Existing tools may not adequately capture the nuanced experiences of pediatric patients across different age groups and conditions.

Purpose of the Study:

  • To develop patient-derived Pediatric Eye Questionnaires (PedEyeQ) for distinct assessment of eye-related quality of life (ER-QOL) and functional vision.
  • To create age-appropriate instruments for children with diverse eye conditions.

Main Methods:

  • A questionnaire development study involving 444 children (0-17 years) and their parents across 10 diagnostic categories.
  • Master questionnaires were created from patient-derived concerns, followed by factor and Rasch analyses for item reduction and domain identification.
  • Analyses were stratified by age groups (0-4, 5-11, 12-17 years) and specific domains.

Main Results:

  • Developed multiple versions of PedEyeQ tailored for different age groups (child and parent/proxy) and specific domains.
  • Child PedEyeQ versions assessed functional vision, bother, social impact, and frustration (10-39 items).
  • Parent/Proxy PedEyeQ versions included functional vision, bother, social impact, frustration, and eye care domains (29-42 items), plus parent-specific impacts (35 items).

Conclusions:

  • Successfully developed Pediatric Eye Questionnaires (PedEyeQ) through a rigorous, patient-centered approach.
  • These questionnaires enable separate and accurate assessment of functional vision and ER-QOL in children with any eye condition.
  • The PedEyeQ provides valuable tools for clinicians and researchers evaluating the impact of eye conditions on children's lives.
Abstract

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