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Living with Ménière's disease: an interpretative phenomenological analysis
Kulvinder Kaur Talewar1, Elizabeth Cassidy2, Anne McIntyre2
1Barts Health NHS Trust, Neurosciences, Neurological Physiotherapy Outpatients, Wanstead Hospital, London, UK.
Ménière's disease profoundly impacts daily life, causing loss of control and restricting activities. Patients actively adapt, highlighting the need for empathetic rehabilitation and patient involvement in healthcare.
Area of Science:
- Audiology
- Neurology
- Psychology
Background:
- Ménière's disease is a chronic inner ear disorder.
- It significantly affects patients' quality of life.
- Understanding the lived experience is crucial for effective management.
Purpose of the Study:
- To explore the subjective experiences of individuals with Ménière's disease.
- To identify key aspects of daily life affected by the condition.
- To understand participants' perspectives on significant life impacts.
Main Methods:
- Qualitative study utilizing semi-structured interviews.
- Four women diagnosed with Ménière's disease participated.
- Interpretative Phenomenological Analysis (IPA) was used for data analysis.
Main Results:
- Three themes emerged: loss of control due to vertigo, complete life disruption, and active adaptation strategies.
- Vertigo significantly impacts physical and psychosocial functioning.
- The condition restricts meaningful activities, relationships, and autonomy.
Conclusions:
- Ménière's disease has a lasting physical and psychosocial impact.
- Acknowledging patients' subjective experiences is vital for therapeutic engagement.
- Patient involvement in healthcare design and delivery is essential.
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