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Development of the family needs questionnaire - pediatric version [FNQ-P] - phase I

Caron Gan1,2, F Virginia Wright1,3

  • 1a Bloorview Research Institute , Toronto , Ontario , Canada.

Brain Injury
|January 25, 2019
PubMed

Insights

Researchers adapted the Family Needs Questionnaire for families of children with acquired brain injury (ABI). The modified Delphi technique and cognitive interviews ensured content validity for the new pediatric Family Needs Questionnaire (FNQ-P).

Area of Science:

  • Neuroscience
  • Pediatric Psychology
  • Rehabilitation Medicine

Background:

  • Acquired brain injury (ABI) in children and youth presents unique family support needs.
  • Existing adult-focused questionnaires may not adequately capture the specific challenges faced by families of pediatric ABI patients.
  • A validated tool is needed to assess family needs in this population for improved care.

Purpose of the Study:

  • To adapt the adult Family Needs Questionnaire for families of children and youth with acquired brain injury (ABI).
  • To develop a content-valid pediatric version of the Family Needs Questionnaire (FNQ-P).

Main Methods:

  • A modified Delphi technique involving 11 ABI clinicians and 7 family caregivers was used to select and refine questionnaire items.
  • Four rounds of anonymous voting and qualitative feedback guided item relevance and wording.
  • Cognitive interviews with 3 parents assessed face and content validity of the adapted questionnaire.

Main Results:

  • The final pediatric Family Needs Questionnaire (FNQ-P) comprises 40 items across six categories: Health Information, Emotional Support, Instrumental Support, Professional Support, Community Support, and Involvement with Care.
  • The Delphi process and cognitive interviews led to consensus on the FNQ-P's face and content validity.
  • Modifications included adjustments to formatting, rating scales, and item wording.

Conclusions:

  • The Delphi process, incorporating input from clinical partners and family caregivers, successfully developed a content-endorsed pediatric Family Needs Questionnaire (FNQ-P).
  • The FNQ-P is ready for further validation studies before implementation in clinical practice.
  • This adapted tool will aid in better understanding and addressing the needs of families coping with pediatric acquired brain injury.
Abstract

Keywords:
Family needsacquired brain injurychildrenfamiliespediatrics

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