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Internet Usage by Polish Patients With Multiple Sclerosis: A Multicenter Questionnaire Study.

Andrzej Potemkowski1, Waldemar Brola2, Anna Ratajczak3

  • 1Department of Clinical Psychology and Psychoprophylaxis, University of Szczecin, Szczecin, Poland.

Interactive Journal of Medical Research
|February 2, 2019
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Summary
This summary is machine-generated.

Polish multiple sclerosis (MS) patients heavily rely on the internet for information about their condition and treatments. However, they rarely discuss this online information with their neurologists.

Keywords:
doctor-patient relationshipinformation seekinginternetmultiple sclerosis

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Area of Science:

  • Neurology
  • Internet Studies
  • Patient Health Behavior

Background:

  • The internet is a vital resource for information and networking, particularly beneficial for individuals managing chronic conditions like multiple sclerosis (MS).
  • MS patients often find value in accessing condition-specific information online.

Purpose of the Study:

  • To assess internet usage patterns among Polish MS patients.
  • To identify prevalent online search topics and patient attitudes towards internet-sourced health information.
  • To examine factors influencing internet use, including disability, disease duration, and online relationship formation.

Main Methods:

  • A survey was administered to 1045 patients across 10 Polish MS centers.
  • 932 patients (89.19%) reported using the internet, with data collected on usage frequency, search subjects, and online interactions.
  • Statistical analysis identified factors associated with internet usage.

Main Results:

  • Over half of surveyed Polish MS patients use the internet frequently (6-7 times/week), with some spending over 2 hours daily.
  • Key search topics include general news, information about multiple sclerosis (MS), new treatments, and disease progression.
  • Higher education, living in urban areas, relapsing-remitting MS, and established relationships correlated with increased internet use. Conversely, those needing assistance and widowers showed lower usage.

Conclusions:

  • The internet serves as a primary source of information on multiple sclerosis (MS) and its treatments for Polish patients.
  • Online interactions can facilitate relationship building, though these tend to be transient.
  • A significant portion of Polish MS patients do not consult their neurologists regarding information obtained online.