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Variations of sex development: The first German interdisciplinary consensus paper
S Krege1, F Eckoldt2, A Richter-Unruh3
1Dept. of Urology, Kliniken Essen-Mitte, Germany.
Journal of Pediatric Urology
|February 5, 2019
Summary
New guidelines address variations of sex development (DSD), moving beyond binary gender classifications. This consensus paper offers recommendations for medical and psychosocial care, prioritizing human rights and informed decision-making for affected individuals and families.
Area of Science:
- Medical and Social Sciences
- Human Rights and Ethics
Background:
- Variations of Sex Development (DSD) encompass diverse congenital conditions affecting chromosomal, gonadal, and phenotypic sex.
- Societal binary gender classification causes distress for individuals with DSD and their families.
- Historical medical practices, including early surgeries, aimed for unambiguous sex assignment but often failed to align with individuals' gender identity.
Framework:
- A 2012 consensus process involved interdisciplinary German academics, clinicians, and advocacy/service-user groups.
- Recommendations were developed through a structured consensus based on scientific literature and lived experiences.
Implementation:
- 37 consensus recommendations were agreed upon, with the level of agreement indicated by percentages.
- The consensus paper reflects a paradigm shift towards a more open view of gender.
Implications:
- Aids in the diagnostics of newborns with DSD.
- Supports parents and affected individuals in managing biological and social consequences of DSD.
- Provides information on current trends in medical and surgical therapy for DSD.
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