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Developing a Decision-Aid Website for Breast Cancer Surgery: An Action Research Approach
Yu-Ting Hung1,2, Ching-Fang Wu3, Te-Hsin Liang4
1School of Nursing, National Yang-Ming University, Taipei, Taiwan.
Journal of Medical Internet Research
|February 5, 2019
Summary
A new website offers breast cancer surgery patients comprehensive information, psychological support, and decision-making tools. This resource aims to empower women in choosing the best surgical option and improve communication with healthcare providers.
Area of Science:
- Oncology
- Health Informatics
- Patient Support
Background:
- Early-stage breast cancer patients face complex surgical decisions with varied outcomes.
- Limited clinical communication time increases patient stress and hinders informed decision-making.
Purpose of the Study:
- To develop a multifunctional, web-based decision-making tool for breast cancer surgery patients.
- To provide integrated medical information, psychological support, and decision simulation.
Main Methods:
- Action research methodology involving planning, action, evaluation, and reflection.
- Multidisciplinary teamwork including medical experts, programmers, and patient focus groups.
- Iterative website development based on expert and patient feedback.
Main Results:
- Development of a comprehensive website featuring an animated patient story, detailed cancer information, and interactive decision-making simulators.
- Inclusion of "Woman's Voice," "Cancer Information Treasure House," "Decision-making Simulator," and "Recommended Links."
- Website refined through expert review and focus groups with breast cancer survivors.
Conclusions:
- The first web-based breast cancer surgery decision-making tool developed in Taiwan.
- Aims to enhance patient autonomy, improve clinician communication, and provide crucial support.
- Designed to be a practical aid for patients navigating breast cancer surgery choices.
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