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An Algorithmic Approach to Nutritional Difficulties in People With Developmental Disabilities
Suma Chennubhotla1, Rebecca Hertog1, John E Williams1
1Suma Chennubhotla and Rebecca Hertog, University of Louisville; John E. Williams, University of South Carolina School of Medicine-Greenville, Department of Developmental Pediatrics; Debra Hanna, Memphis, TN; and Thomas L. Abell, Department of Medicine, Division of Gastroenterology, Hepatology and Nutrition, University of Louisville.
Intellectual and Developmental Disabilities
|February 5, 2019
Summary
Caregivers and healthcare providers can use this guide to address feeding and nutrition challenges in adults with developmental disabilities, improving their quality of life. It offers solutions for aspiration, difficult mealtimes, and tube feeding decisions.
Area of Science:
- Medicine
- Nutrition Science
- Developmental Pediatrics
Background:
- Rising survival rates of individuals with developmental disabilities into adulthood necessitate specialized nutritional support.
- Feeding difficulties and medical complications like aspiration and gastrointestinal dysmotility are common in this population.
- Lack of comprehensive guidelines complicates nutritional management for caregivers and healthcare providers.
Purpose of the Study:
- To provide an algorithmic approach for managing nutrition-related issues in adults with developmental disabilities.
- To address common problems including aspiration, laborious mealtimes, and mealtime refusal.
- To guide decisions on tube feeding routes and the transition back to oral feeding.
Main Methods:
- Development of an algorithmic approach based on clinical expertise and existing literature.
- Focus on practical solutions for common feeding and nutrition challenges.
- Structured guidance for decision-making in complex cases.
Main Results:
- An algorithmic framework to systematically address aspiration risks.
- Strategies for managing laborious meals and overcoming mealtime refusal.
- Evidence-based recommendations for selecting tube feeding methods and criteria for returning to oral feeding.
Conclusions:
- The proposed algorithmic approach offers a structured method for optimizing nutritional care in adults with developmental disabilities.
- This guide aims to empower caregivers and healthcare providers in managing complex feeding and nutrition issues.
- Implementation of these guidelines can improve health outcomes and quality of life for individuals with developmental disabilities.
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