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A beginner's guide to data stewardship and data sharing.

Marcel P Dijkers1

  • 1Department of Physical Medicine and Rehabilitation, Wayne State University, Detroit, MI, USA. marcellinus.p.dijkers@wayne.edu.

Spinal Cord
|February 7, 2019
PubMed
Summary
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Research data sharing is increasingly required for spinal cord injury studies. Early planning minimizes costs and maximizes benefits for all stakeholders involved in research.

Area of Science:

  • Spinal cord injury research
  • Biomedical data management
  • Scientific communication

Background:

  • Growing emphasis on research data sharing by funding bodies, publishers, and professional organizations.
  • Data sharing is recognized for its ethical, societal, and practical benefits in advancing spinal cord injury research.
  • Retrospective data sharing can be resource-intensive, highlighting the importance of proactive planning.

Purpose of the Study:

  • To guide spinal cord injury researchers and stakeholders in understanding and implementing effective data sharing practices.
  • To facilitate the realization of benefits associated with data sharing across the spinal cord injury research community.

Main Methods:

  • A narrative review of existing literature on research data sharing principles, benefits, and challenges.

Related Experiment Videos

  • Exploration of resources and services provided by organizations supporting research data management and sharing.
  • Non-systematic review of medical research and health care services literature, supplemented by website analysis.

    • Main Results:

    • Many organizations now mandate and support research data sharing, emphasizing its ethical and practical advantages.
    • Integrating a data management plan into research proposals from the outset limits costs and ensures budget allocation for data sharing.
    • Numerous resources and support services are available to assist researchers in preparing and depositing their data.

    Conclusions:

    • The mandate for research data sharing is expected to persist, making it essential for researchers to understand the practicalities involved.
    • Familiarity with data sharing requirements and preparation is crucial for researchers aiming to publish in journals like Spinal Cord.