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Reaching Parents Through an Online Community
Anne Boat1,2, Matthew Monteleone1,2, Jennifer J Lee1
1Departments of Anesthesiology.
Insights
Anesthetic and sedative drugs may harm developing brains. Further research and patient engagement are crucial for safe pediatric anesthesia and improved outcomes.
Area of Science:
- Neuroscience
- Anesthesiology
- Pediatric Medicine
Background:
- Animal studies suggest anesthetic and sedative drugs can cause neurotoxicity in developing brains.
- Human studies on anesthetic neurotoxicity in children are limited and inconclusive.
- Understanding and mitigating risks of anesthetic neurotoxicity is vital for pediatric patient safety.
Purpose of the Study:
- To address the need for improved research on anesthetic neurotoxicity in pediatric populations.
- To foster collaboration and communication among diverse stakeholders in pediatric anesthesia research.
- To introduce novel methods for enhancing patient engagement and outcomes research.
Main Methods:
- Overview of discussions from the sixth PANDA Symposium session on stakeholder engagement.
- Introduction of the Family Talkboard, an online platform designed for patient outreach and engagement.
- Focus on strategies to improve communication and coordinate research efforts.
Main Results:
- Identified key stakeholders including patients, families, clinicians, researchers, and federal agencies.
- Highlighted the potential of the Family Talkboard to enhance patient involvement in research.
- Emphasized the importance of coordinated efforts to advance research in pediatric anesthesia.
Conclusions:
- Further research is essential to clarify the neurotoxic effects of anesthetics in children.
- Enhanced patient and family engagement is critical for improving pediatric anesthesia outcomes.
- Innovative platforms like the Family Talkboard can facilitate research and quality improvement.
Abstract:
Scientific studies in animal models have demonstrated the neurotoxic effects of anesthetic and sedative drugs on the developing brain. Human studies, however, have been limited and less conclusive. The implications for clinical care remain unclear, and there is a critical need for further research on anesthetic toxicity to ensure safe anesthesia practices for infants and children. The sixth PANDA Symposium organized a session on "Engaging Stakeholders to Support Research" to facilitate dialog around improving communication and collaboration among stakeholders and to promote coordinated research efforts. Key stakeholders include patients, families, clinicians, researchers, community organizations, and federal agencies. This article provides an overview of an online platform called the Family Talkboard, a novel method which is destined to enhance patient outreach, engagement, and quality improvement, as well as outcomes research.
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