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A co-produced method to involve service users in research: the SUCCESS model
Bridie Angela Evans1, Alison Porter2, Helen Snooks2
1Medical School, Swansea University, Singleton Park, Swansea, SA2 8PP, UK. b.a.evans@swansea.ac.uk.
Patients and carers co-produced a research involvement model called SUCCESS, ensuring sustained public and patient involvement in health services research over eight years. This patient-led approach fostered effective collaboration and improved study design.
Area of Science:
- Health Services Research
- Patient and Public Involvement
- Co-production Methods
Background:
- Public and patient involvement is crucial for effective health services research.
- Co-production is recommended, but methods for developing involvement models are under-researched.
- This study details a patient and carer-led approach to creating an involvement model.
Purpose of the Study:
- To describe the co-production of a public and patient involvement model by service users.
- To implement and assess the effectiveness of a patient-designed involvement strategy.
Main Methods:
- Recruited patients and carers with chronic conditions to develop an involvement model.
- Utilized workshops, meetings, and email discussions for co-production.
- Collected written records to document the co-production process.
Main Results:
- Developed the SUCCESS (Service Users with Chronic Conditions Encouraging Sensible Solutions) model.
- Key principles included inclusivity, resources, accessibility, communication, and clarity of roles.
- The model involved 16 service users and 20 panel members, leading to 218 research activities over 8 years.
Conclusions:
- The co-produced SUCCESS model facilitated sustained patient and carer involvement in research.
- The model addressed user needs and priorities, enhancing research relevance.
- Further research should explore broader application and impact assessment.
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