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Impact of specialized pediatric palliative care programs on communication and decision-making

Jürg C Streuli1, Kimberley Widger2, Christina Medeiros3

  • 1Lawrence S. Bloomberg Faculty of Nursing, University of Toronto, Canada; University Children's Hospital, University of Zurich, Switzerland.

Patient Education and Counseling
|February 18, 2019
PubMed

Insights

Specialized pediatric palliative care (SPPC) programs enhance communication and decision-making for children with life-threatening illnesses. While beneficial for families and healthcare professionals, more research is needed on child and sibling communication.

Area of Science:

  • Pediatric Palliative Care
  • Healthcare Communication
  • Clinical Decision-Making

Background:

  • Children with life-threatening conditions face complex communication and decision-making challenges.
  • Effective communication is crucial for quality care and family support in pediatric palliative care.

Purpose of the Study:

  • To analyze the impact of specialized pediatric palliative care (SPPC) programs on communication and decision-making.
  • To identify improvements in communication dynamics involving children, families, and healthcare professionals (HCPs).

Main Methods:

  • A systematic review of 13 studies was conducted.
  • Searches were performed across multiple major scientific databases up to September 2018.
  • Study quality was assessed, with a significant portion found to be of poor quality.

Main Results:

  • SPPC programs demonstrably improve communication and decision-making among families and HCPs.
  • Families engaged in SPPC programs reported increased discussions with HCPs on various topics.
  • Data regarding communication with children, siblings, and extended family was limited and of low quality.

Conclusions:

  • SPPC programs positively influence communication and decision-making for critically ill children and their families.
  • Further research is essential to understand the child's perspective, barriers to end-of-life discussions, and specific program components driving positive outcomes.
Abstract

Keywords:
ChildrenCommunicationCounselingDecision-makingPalliative carePediatricsSpecialized pediatric palliative care program

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