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Parents' Knowledge, Attitude and Behaviour toward Cleft Lips and Cleft palate in Kencana Hospital, Serang, Banten
Daniel Ardian Soeselo1, Alexandria Stephanie Suparman1, Agus Santoso Budi2
1Dept. of Surgery, Atma Jaya School of Medicine and Health Science, Jakarta.
Insights
Parents of children with cleft lip and cleft palate often have limited knowledge but demonstrate positive attitudes and behaviors towards treatment. Charity surgical events are crucial for providing access to care for affected families.
Area of Science:
- Medical Genetics
- Developmental Biology
- Public Health
Background:
- Cleft lip (CL) and cleft palate (CP) are common congenital conditions arising from embryonic developmental issues.
- These conditions can lead to significant challenges in feeding, speech, dental development, and ear health.
- Effective treatment is essential to enhance the quality of life for affected individuals.
Purpose of the Study:
- To assess parental knowledge, attitudes, and behaviors regarding CL and CP.
- To analyze the relationship between parental knowledge and attitudes toward CL and CP.
- To understand the impact of charity surgical events on access to care.
Main Methods:
- A cross-sectional study was conducted with parents attending cleft charity surgery.
- Data were collected on parental demographics, knowledge, attitudes, and behaviors concerning CL and CP.
- The Fisher exact test was used for statistical analysis.
Main Results:
- A significant proportion of parents had low educational backgrounds and limited income, often relying on charity care.
- While a majority displayed good attitudes and behaviors towards CL and CP, knowledge levels were often insufficient.
- No significant relationship was found between parental knowledge and attitudes toward CL and CP (P value = 1.00).
Conclusions:
- Low parental knowledge regarding CL and CP may stem from educational background and information gaps from healthcare providers.
- Despite knowledge deficits, parents exhibited positive attitudes and proactive behaviors in seeking medical help.
- Charity surgical initiatives play a vital role in ensuring children with CL and CP receive necessary medical interventions.
Introduction:
Cleft lips (CL) and cleft palate (CP) are common congenital diseases caused by gene mutation in embriology development of the lips and mouth at 4 weeks of gestation. CL and CP can cause several problems such as difficulty in eating, speaking, abnormality in teeth and mouth development and ear iritation. Adequate treatment is needed to improve patients' quality of life.
Material And Method:
This cross sectional study take samples purposively from all parents who joined in cleft charity surgery in Kencana Hospital, Serang, Banten on October 24th 2018. This study identify parents' knowledge, attitude and behaviour towards CL and CP and analyzed the relationship of parents' knowledge and attitude towards CL and CP. Statistical analysis used in this study is Fisher method.
Result:
Ten patients undergo labioplasty surgery, 1 patient undergo labioplasty revision, 5 patients undergo palatoplasty surgery and 10 patients undergo labioandpalatoplasty surgery. The majority of parents' education background have income < 3,5 million a month 84.6% (22 people), do not have any social insurance 88.5% (23 people) and joined in because of they cannot pay for medical treatment 96,2% (25 people). 6.2% (25 people) have under knowledge, 69.2% (18 people) have good attitude and 84.6% (22 people) have good behaviour toward CL and CP. There is no significant relationship between parents' knowledge and attitude toward CL and CP P value = 1,00 (P > 0,05).
Discussion:
Parent's under knowledge is caused by their low educational background and inaccurate information and education provided by medical professional. But, they had a good attitude and behaviour toward CL and CP because they had initiative to look for medical help and treat their children same as other normal one. Although they received inaccurate information and education about cleft disease, all parents looked for medical help and did what they were told by medical professionals.
Conclusion:
The majority of parents in this study have under knowledge about cleft lips and cleft palate but they are still looking for medical help to treat their children. This charity significantly helps parents whose children have cleft lips, with or without cleft palate, to get treated in that area.
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