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Beyond self-tracking: Exploring and unpacking four emerging labels of patient data work
1Fondazione Bruno Kessler, Italy.
Abstract:
Despite the growing attention of researchers, healthcare managers and policy makers, data gathering and information management practices are largely untheorized areas. In this work are presented and discussed some early-stage conceptualizations: patient-generated health data, observations of daily living, quantified self and personal health information management. As I shall try to demonstrate, these labels are not neutral; rather, they underpin quite different perspectives with respect to health, patient-doctor relationship and the status of data.
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