Hospital Care and Surgical Treatment of Children With Congenital Upper Limb Defects
E Koskimies-Virta1,2, I Helenius1, N Pakkasjärvi1
1Department of Paediatric Surgery, Turku University Central Hospital, Turku, Finland.
Insights
Children with upper limb defects require extensive hospital care, with an 11-fold higher burden compared to average children. This necessitates specialized pediatric and surgical subspecialty collaboration for effective treatment.
Area of Science:
- Pediatric Surgery
- Congenital Malformations
- Healthcare Management
Background:
- Congenital upper limb defects affect a significant number of children.
- Understanding the hospital care patterns for these children is crucial for resource allocation and treatment planning.
Purpose of the Study:
- To evaluate the comprehensive hospital care received by children diagnosed with congenital upper limb defects.
- To quantify the healthcare burden associated with these conditions.
Main Methods:
- A cohort of 362 children born between 1993-2005 with upper limb defects was identified using the Finnish Register of Congenital Malformations.
- Hospital discharge data, focusing on operative treatments, were analyzed until December 2009, with a mean follow-up of 10.2 years.
- Data were compared against a control population of 1.1 million children in Finland.
Main Results:
- 87% of children with upper limb defects experienced hospital admissions, averaging one per year, which is 11 times higher than the general child population.
- An average of four surgical procedures per child were performed, with orthopedic procedures (326 for upper limbs) being most common.
- Non-surgical admissions constituted 60% of total admissions, primarily due to congenital anomalies, gastrointestinal, and respiratory issues.
Conclusions:
- The management of children with upper limb defects requires a multidisciplinary approach involving pediatric and surgical specialists.
- The overall hospital care burden for these children is substantially higher, necessitating efficient and coordinated care pathways.
Background And Aims:
To evaluate hospital care of children with congenital upper limb defects.
Materials And Methods:
Three hundred and sixty-two children with an upper limb defect, born 1993-2005, and alive after birth admission were identified in the Finnish Register of Congenital Malformations. The data on hospital care, with focus on operative treatment, were collected from the National Hospital Discharge Register, until 31 December 2009. Mean follow-up was 10.2 years (range: 4-17 years). The results were compared with data on the whole children population (1.1 million) in Finland.
Results:
Most children (321, 87%) with upper limb defects had hospital admissions: on average, one admission/year (range: 0-36), and they were treated in hospital 5 days/year (range: 0-150), which is 11-fold compared with an average child in Finland. Four surgical procedures/child were done (range: 0-45), including one hand surgical procedure. The most common procedures were orthopedic (513); gastrointestinal (263); ear, nose, and throat (143); dental (118); thoracic (48); and urologic (44). Of the 513 orthopedic procedures, 326 were directed to upper limbs, 107 to the lower limbs, and 10 to the spine. Median operation age was 2 years 7 months. Altogether, 60% of hospital admissions were non-surgical. Leading causes of non-operative hospital admissions were congenital anomalies (32%), gastroenterological problems (20%), respiratory tract conditions (13%), neurological problems (7%), perinatal conditions (5%), and infectious diseases (5%).
Conclusion:
Treatment of children with upper limb defects is teamwork between pediatric and surgical subspecialties. Burden of hospital care is 11-fold as compared with an average child.
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