Living with multimorbidity? The lived experience of multiple chronic conditions in later life

Tom Porter1, Bie Nio Ong2, Tom Sanders3

  • 1University of East Anglia, UK.

Insights

The biomedical definition of multimorbidity (multiple long-term conditions) doesn't fully capture older adults' lived experiences. This study reveals a significant gap between clinical assumptions and patients' realities in managing chronic conditions.

Area of Science:

  • Gerontology
  • Sociology of Health and Illness
  • Qualitative Health Research

Background:

  • Multimorbidity, defined as two or more long-term conditions, is a growing global health challenge.
  • Existing research on multimorbidity often overlooks the lived experiences of patients, particularly older adults.
  • The concept of illness prioritization is prevalent in understanding self-management of multiple chronic conditions.

Purpose of the Study:

  • To explore the lived experience of illness in older people with multiple long-term conditions.
  • To investigate the relevance of the biomedical concept of multimorbidity to individual experiences.
  • To highlight discrepancies between clinical perspectives and lay understandings of managing multiple chronic conditions.

Main Methods:

  • A qualitative, longitudinal UK study.
  • Purposive sampling from an existing cohort, involving 15 older adults with multiple conditions.
  • 27 in-depth interviews analyzed using Constructivist Grounded Theory.

Main Results:

  • The biomedical conceptualization of multimorbidity has limited applicability to the lived experiences of older adults.
  • The term 'concurrency' may not accurately reflect the subjective experience of having multiple conditions.
  • Significant differences exist between clinical assumptions and the self-management realities faced by individuals.

Conclusions:

  • The lived experience of multiple chronic conditions in older age differs substantially from clinical definitions of multimorbidity.
  • A phenomenological approach is crucial for understanding the subjective realities of patients with multiple long-term conditions.
  • Making lay perspectives visible is essential for improving the care and support for individuals managing complex health needs.

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