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Making research central to good paediatric practice.

Hugh T Davies1, Bob Phillips2,3, Jennifer Preston4

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This summary is machine-generated.

Research involving children and young people (CYP) requires careful consideration of complexities and risks. This article proposes seven principles for ethical dialogue and decision-making in CYP research, emphasizing transparency and inclusivity.

Keywords:
ethicshealth services research

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Area of Science:

  • Bioethics
  • Pediatric Research
  • Research Ethics

Background:

  • International approaches to research involving children and young people (CYP) are often cautious or protective.
  • These protective stances may stem from misconceptions that need to be addressed.
  • Ethical considerations in CYP research are complex and involve potential risks.

Purpose of the Study:

  • To address misconceptions surrounding research with children and young people (CYP).
  • To explore the complexities and risks inherent in CYP research.
  • To propose a framework for ethical dialogue and decision-making in this field.

Main Methods:

  • The article is an introductory piece, outlining complexities and risks.
  • It discusses the importance of involving CYP and their families in all research aspects.
  • It proposes seven principles to guide the ongoing debate on CYP research ethics.

Main Results:

  • The article identifies key areas for consideration: involving CYP and families, obtaining valid consent/assent, and reporting research findings.
  • Seven principles are proposed to ensure an evidence-informed, transparent, balanced, conscientious, substantive, comprehensive, and revisable dialogue.

Conclusions:

  • A collaborative and principled approach is necessary for ethical research involving children and young people (CYP).
  • Adherence to the seven proposed principles will foster a more robust and inclusive debate on CYP research.
  • Ensuring all legitimate interests are considered is a shared responsibility.