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Published on: September 19, 2019
Psychometric Properties of the Parent and Child Problem Areas in Diabetes Measures
Meredyth A Evans1, Lindsey E G Weil2, Jenna B Shapiro3
1Department of Child and Adolescent Psychiatry, Ann & Robert H. Lurie Children's Hospital of Chicago.
Insights
New scales reliably measure diabetes distress in children (PAID-C) and their parents (P-PAID-C). These tools can help clinicians assess emotional well-being and guide treatment for type 1 diabetes management.
Area of Science:
- Pediatric Endocrinology
- Psychology
- Clinical Research
Background:
- Type 1 diabetes management presents daily challenges for children and parents, often leading to significant emotional distress.
- A validated tool is needed to measure this distress and inform clinical interventions.
Purpose of the Study:
- To evaluate the psychometric properties of the Problem Areas in Diabetes Scale adapted for children (PAID-C) and their parents (P-PAID-C).
- To establish the reliability and validity of these measures for assessing diabetes-specific emotional distress in pediatric populations.
Main Methods:
- The study involved 804 children (ages 8-12) and 968 parents from 42 US diabetes camps.
- Participants completed measures of diabetes distress, strengths, and self-care skills.
- Exploratory and confirmatory factor analyses were used to validate the PAID-C and P-PAID-C scales.
Main Results:
- The PAID-C is an 11-item, two-factor measure (Cronbach's α=.91), and the P-PAID-C is a 16-item measure (Cronbach's α=.92).
- Both scales showed positive correlations with HbA1c and negative correlations with diabetes-related strengths and self-care skills, demonstrating criterion validity.
Conclusions:
- The PAID-C and P-PAID-C are reliable and valid instruments for assessing diabetes-specific emotional distress in children with type 1 diabetes and their parents.
- These measures can be utilized in routine clinical assessments to guide decision-making and improve patient outcomes.
Objective:
Children with type 1 diabetes and their parents face daily self-care demands, leading to diabetes-specific emotional distress. A standardized measure of diabetes distress can guide clinical care and prevent negative outcomes.
Methods:
This study evaluated the psychometric properties of child- and parent-report measures of the Problem Areas in Diabetes Scale, adapted for children ages 8-12 (PAID-C) and their parents (P-PAID-C). Participants were from 42 diabetes camps in the United States. Children (N = 804; mean age = 10.3 ± 1.1) and parents (N = 968) completed measures of diabetes distress, diabetes-related strengths, and self-care skills. Half of the sample was used for exploratory factor analyses (EFA) with direct oblimin rotation and the other half for confirmatory factor analyses (CFAs).
Results:
For the PAID-C, EFA and CFAs supported an 11-item two-factor measure, Cronbach's α = .91, accounting for 54.6% of the variance. For the P-PAID-C, analyses resulted in a 16-item measure, Cronbach's α = .92, accounting for 51.9% of the variance. PAID-C and P-PAID-C scores were positively correlated with HbA1c (rchild = .08, p = .04; rparent = .18, p < .001), and negatively correlated with diabetes-related strengths (rchild = -.38, p < .001, rparent = -.29, p < .001) and parent report of child self-care skills (rparent = -.13, p < .001; rchild = -0.07, p = ns).
Conclusions:
Initial psychometrics suggest that the PAID-C and P-PAID-C reliably and validly capture diabetes-specific emotional distress for children and their parents. Associations with glycemic control, self-care, and diabetes strengths demonstrate criterion validity. Both measures have potential applications for routine, clinic-based assessments of diabetes distress and may guide clinical decision-making.
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