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Relating Experienced To Recalled breathlessness Observational (RETRO) study: a prospective study using a mobile phone
Jacob Sandberg1, Robert Lansing2, Peter Anderberg3
1Department of Clinical Sciences, Division of Respiratory Medicine and Allergology, Lund University, Lund, Sweden.
BMJ Open Respiratory Research
|April 9, 2019
Summary
This study explores how patients with cardiorespiratory diseases recall their breathlessness. Using a mobile app, it compares experienced, recalled, and predicted breathlessness to improve symptom management.
Area of Science:
- Cardiorespiratory Medicine
- Digital Health
- Patient-Reported Outcomes
Background:
- Breathlessness is a common symptom in cardiorespiratory diseases.
- Physician assessment often relies on patient symptom recall.
- The relationship between experienced and recalled breathlessness is not well understood.
Purpose of the Study:
- To evaluate the relationship between experienced breathlessness and recalled breathlessness.
- To assess the relationship between experienced breathlessness and predicted future breathlessness.
- To investigate novel methods for collecting daily life symptom data.
Main Methods:
- Utilizing a mobile phone application for daily data collection.
- Recruiting medically stable adult participants with cardiorespiratory conditions.
- Employing Numerical Rating Scale (NRS) for breathlessness intensity (0-10) and daily/weekly recall over one week.
- Analyzing data using multivariable random effects regression models.
Main Results:
- Results are pending publication in peer-reviewed journals.
- Findings will be presented at relevant scientific conferences.
- The study protocol is designed to yield significant insights into breathlessness perception.
Conclusions:
- This study protocol outlines an innovative approach to understanding breathlessness.
- It aims to bridge the gap between subjective patient experience and clinical assessment.
- The findings are expected to enhance the management of cardiorespiratory conditions.
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