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Inflammatory Bowel Disease: A Practical Path to Transitioning From Pediatric to Adult Care
Tara Menon1,2, Anita Afzali1,2
1The Ohio State University Inflammatory Bowel Disease Center, Columbus, Ohio, USA.
Insights
Transitional care helps young adults with chronic conditions move from pediatric to adult healthcare. Structured programs are crucial for inflammatory bowel disease (IBD) patients to ensure continuity of care and self-advocacy.
Area of Science:
- Pediatric Healthcare
- Adult Healthcare
- Chronic Illness Management
Background:
- Children with chronic illnesses are surviving into adulthood, necessitating a focus on transitional care.
- Transitional care involves coordinated movement of young adults with chronic conditions from pediatric to adult healthcare settings.
- This transition is linked to worse health outcomes due to healthcare model differences and patient factors.
Purpose of the Study:
- To review the current status of transitional care in inflammatory bowel disease (IBD).
- To identify challenges and variability in IBD transitional care models.
- To provide resources for assessing patient readiness and supporting transitioning young adults.
Main Methods:
- Literature review of recent IBD studies on transitional care.
- Analysis of factors influencing the transition period.
- Identification of best practices and resource needs.
Main Results:
- Inflammatory bowel disease (IBD) affects 25% of patients before adulthood, with increasing pediatric incidence.
- Childhood IBD often presents with more severe disease, highlighting the need for structured transition programs.
- Current transition models lack standardization and are based on descriptive rather than prospective data.
Conclusions:
- Structured transitional care programs are imperative for young adults with IBD to ensure continuity of care.
- Addressing healthcare model differences and promoting self-advocacy are key components of successful transitions.
- Further research is needed to establish optimal, evidence-based models for IBD transitional care.
Abstract:
The growing need for transitional care is quickly becoming apparent in the medical community because children with chronic illnesses are surviving into adulthood. Transitional care is the coordinated movement of young adults with chronic conditions from the pediatric to adult health care setting. This transition period is associated with poorer health outcomes due to differences in pediatric and adult health care models, reluctance to change providers, and transfer of disease ownership. These factors must be considered in inflammatory bowel disease (IBD), in which 25% of patients are diagnosed before adulthood and there is an increasing incidence in the pediatric population. Additionally, those with childhood IBD tend to have more severe disease, making structured transition programs imperative to ensure continuity of care and promote self-advocacy. Recommended models for transition have been based on descriptive data rather than on prospective or randomized studies, but the recent IBD literature supports a need for transitional care. Regardless, a great deal of variability in clinical practice remains because there is no agreed upon optimal transition model. This review addresses the status of transitional care in IBD and provides helpful resources to assess patient readiness for transition and to assist in the care of the young transitioning adult.
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