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LIMPRINT Study: The Turkish Experience
Pinar Borman1,2, Christine Moffatt3, Susie Murray4
11 Department of Physical Medicine and Rehabilitation (PMR), University of Hacettepe Faculty of Medicine, Ankara, Turkey.
Lymphatic Research and Biology
|April 18, 2019
Summary
Lymphedema significantly impacts quality of life in Turkey, with many patients lacking adequate treatment and support. This study highlights the need for improved national health policies for lymphedema diagnosis and care.
Area of Science:
- Medical Research
- Public Health
- Lymphedema Management
Background:
- Lymphedema and chronic edema represent a significant global healthcare challenge.
- The Lymphoedema Impact and Prevalence - International (LIMPRINT) study aims to assess lymphedema's prevalence and functional impact.
Purpose of the Study:
- To determine the prevalence and functional impact of lymphedema in adult populations within Turkey.
- To evaluate the demographic and clinical characteristics of lymphedema patients in Turkey.
- To assess the quality of life and disability associated with lymphedema in the Turkish population.
Main Methods:
- Recruited 1051 patients from eight centers in Turkey following the LIMPRINT study protocol.
- Utilized core and module tools to collect data on demographics, clinical properties, disability, and quality of life (QoL).
Main Results:
- The majority of Turkish patients were women, housewives, with secondary lymphedema post-cancer treatment.
- Most patients had International Society of Lymphology (ISL) grade 2 lymphedema, often with duration <5 years.
- Impaired QoL and functionality were common, with psychological support often neglected; access to care was hindered by distance and cost.
Conclusions:
- The study reveals the current status, characteristics, and unmet needs in lymphedema diagnosis and treatment in Turkey.
- Identified a significant burden of lymphedema on patients and their families.
- Emphasized the necessity for national health policies to address prevention, diagnosis, and treatment of lymphedema in Turkey.
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