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Informed Consent in Biomedical Research.

Fida K Dankar1, Marton Gergely1, Samar K Dankar2

  • 1College of IT, UAEU, Al Ain, P.O.Box 15551, United Arab Emirates.

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|April 23, 2019
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Summary

Informed consent practices have evolved significantly over 100 years, creating a disconnect with modern medical research goals. This paper proposes new frameworks to bridge this gap for better research integrity.

Keywords:
Biomedical dataBiomedical researchInformed consentMedical carePrivacy

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Area of Science:

  • Medical Ethics
  • Clinical Research
  • Bioethics

Background:

  • Informed consent has undergone significant evolution over the past century.
  • Advances in medicine and data collection have created a misalignment between informed consent and research objectives.
  • A critical need exists to address this disconnect and develop new frameworks.

Purpose of the Study:

  • To explore the historical trajectory and unify definitions of informed consent.
  • To critically evaluate and thematically classify existing research on informed consent.
  • To offer guidance for future research by leveraging insights from current informed consent literature.

Main Methods:

  • Historical analysis of informed consent evolution.
  • Systematic review and thematic analysis of current informed consent research.
  • Synthesis of findings to propose future research directions.

Main Results:

  • Identified a significant historical shift in informed consent principles.
  • Classified current research into key themes, highlighting existing challenges.
  • Developed a foundation for future research by analyzing current literature.

Conclusions:

  • The traditional concept of informed consent is misaligned with contemporary medical research.
  • New frameworks are essential to bridge the gap between informed consent and research goals.
  • Further research is needed to refine and implement updated informed consent models.