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Size and Prevalence of Pediatric Aerodigestive Programs in 2017
Lindsey Gumer1, Rachel Rosen2, Benjamin D Gold3
1Aerodigestive Program, Digestive Health Institute, Children's Hospital Colorado, University of Colorado, School of Medicine, Aurora, CO.
Insights
Pediatric aerodigestive programs are growing rapidly, offering coordinated care for medically fragile children. These multidisciplinary programs, often in academic settings, serve a wide range of patients.
Area of Science:
- Pediatric subspecialty care
- Multidisciplinary healthcare delivery
- Aerodigestive disorders in children
Background:
- Pediatric aerodigestive programs provide essential multidisciplinary care for complex, medically fragile children.
- These programs are crucial for coordinating care among various pediatric subspecialists.
Purpose of the Study:
- To evaluate the current state of pediatric aerodigestive programs in 2017.
- To assess program size, composition, prevalence, and patient volume.
Main Methods:
- An 11-question survey was distributed to the Pediatric Gastroenterology International Listserv.
- Data collected included program existence duration, clinic/procedure days, and patient numbers.
Main Results:
- Thirty-four programs responded, mostly academic (25) and US-based (31).
- Average program existence was 5.3 years, with 64.7% established in the last 5 years.
- Programs averaged 2 gastroenterologists, 2.8 half-day clinics, 2.6 procedure days, and 184 patient visits annually.
Conclusions:
- Pediatric aerodigestive programs are prevalent and expanding globally.
- Programs are primarily academic, with significant variation in patient capacity based on program age and size.
Objective:
Pediatric aerodigestive programs appear to be rapidly proliferating and provide multidisciplinary, coordinated care to complex, medically fragile children. Pediatric subspecialists are considered essential to these programs. This study evaluated the state of these programs in 2017 by surveying their size, composition, prevalence, and the number of patients that they serve.
Methods:
The North American Society for Pediatric Gastroenterology, Hepatology, and Nutrition Aerodigestive Special Interest Group leadership distributed an 11-question survey to the Pediatric Gastroenterology International Listserv. The mean time of the programs' existence, number of half-day clinics, number of procedure days, number of patients evaluated, and the lead primary specialty were evaluated.
Results:
Thirty-four programs responded. Twenty-five were based in academic centers. Thirty-one programs were located across the United States. The average time of program existence was 5.3 years (standard deviation [SD] = 4.3; range 1-17 years). Approximately 64.7% were started in the past 5 years. Twelve programs were based in the division of gastroenterology. The average number of gastroenterologists serving aerodigestive programs was 2 (SD = 1.1). The mean number of half-day clinic sessions and procedure days were 2.8 (SD = 2.9) and 2.6 (SD = 2), respectively. New and follow-up visits per year in each program averaged 184 (SD = 168; range 10-750).
Conclusions:
Pediatric aerodigestive programs are prevalent, proliferating, and serve a large number of complex patients across North America and the world. This survey demonstrated that programs are predominantly based in academic settings. The number of patients cared for by aerodigestive centers varies widely depending on size and age of program.
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