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Published on: August 25, 2020
Interviews with caregivers during acute asthma hospitalisations
Linda M Gibson-Young1, Karen J Aroian2, Linda S Weglicki3
1Department of Nursing, Auburn University School of Nursing, Auburn, Alabama, USA.
Insights
Caregivers play a vital role in managing childhood asthma at home. This study explored their perceptions of daily asthma management for school-aged children, identifying key themes like burden and symptom recognition.
Area of Science:
- Pediatric Pulmonology
- Family Medicine
- Qualitative Health Research
Background:
- Childhood asthma is a leading cause of pediatric emergency visits, hospitalizations, and missed school days.
- Effective home management is crucial for school-aged children with asthma.
- Understanding caregiver perceptions is key to improving asthma care.
Purpose of the Study:
- To explore family caregiver perceptions of home management for school-aged children hospitalized with asthma.
- To identify challenges and facilitators in daily asthma care from the caregiver's perspective.
Main Methods:
- Qualitative descriptive study utilizing in-depth interviews.
- 15 families with children aged 5-12 years participated.
- Thematic analysis was conducted by four experts.
Main Results:
- Six key themes emerged: caregiver burden, care coordination, managing uncertainty, control efforts, sign/symptom recognition, and trigger recognition.
- Families actively assess and manage asthma daily across all child relations.
- Specific caregiver statements illustrate the impact of asthma on daily life.
Conclusions:
- Findings confirm the significant role of families in daily asthma management.
- Caregiver perceptions provide valuable insights for clinical practice.
- This study extends existing research on childhood asthma management by caregivers.
Abstract:
Objective: Childhood asthma is complex and poor management of childhood asthma is the leading health reason for pediatric emergency department visits, hospitalizations and missed school days for school-aged children. The purpose of this study was to explore caregiver perceptions of home management of childhood asthma in school-aged children who have been hospitalized for asthma. Methods: Using qualitative descriptive design with in-depth interviews, we aimed to explore family caregiver perceptions of managing asthma in school-aged children between 5 and 12 years of age. Results: Data were collected from 17 participants; however, two transcripts were incomplete due to interruption in interview from medical team. The sample consisted of 15 families with child age mean of 8 years, and diagnosed with asthma at 2 years and 8 months. Four experts with asthma and research design analyzed all transcripts and six clear themes emerged. These themes included family or caregiver burden, care coordination, certainty or uncertainty continuum, effort to control, sign or symptom recognition, and trigger recognition. In this article, we defined each theme and identify specific statements from families on daily life when affected by childhood asthma. Conclusions: The findings of this study confirm and extend results from other studies of caregivers who have school-aged children diagnosed with asthma. This study found that families play a vital role in management of asthma on a daily basis and families often assess the overall management of asthma by all child relations throughout the day. Clinical implications are highlighted within each theme.
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