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A web-based carepartner-integrated rehabilitation program for persons with stroke: study protocol for a pilot

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This study tests the CARE-CITE web intervention to help family carepartners support stroke survivors during home-based therapy. The goal is to improve recovery for both patients and caregivers.

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Area of Science:

  • Neurorehabilitation
  • Health Services Research
  • Human-Computer Interaction

Background:

  • Family carepartner support is crucial for stroke survivor recovery, but integration methods often neglect carepartner well-being.
  • Existing research lacks focus on how to involve families in rehabilitation without negative outcomes for carepartners.
  • Creative approaches are needed to engage carepartners and improve physical and psychosocial health for stroke survivors and their families.

Purpose of the Study:

  • To explore the feasibility of a novel web-based intervention, CARE-CITE (Carepartner and Constraint-Induced Therapy).
  • To facilitate positive carepartner involvement in home-based Constraint-Induced Movement Therapy (CIMT) for upper extremity stroke survivors.
  • To enhance the home rehabilitation environment and support for stroke survivors through integrated carepartner engagement.

Main Methods:

  • A feasibility study using a blinded, two-group experimental design with 32 intervention dyads and 16 control dyads.
  • Intervention group received CARE-CITE online modules alongside CIMT; control group received CIMT without structured carepartner involvement.
  • Evaluated carepartner mental health, family conflict, and stroke survivor upper extremity function.

Main Results:

  • The study is currently testing the feasibility of the CARE-CITE intervention.
  • Results will inform the design of larger clinical trials on family-integrated stroke rehabilitation.
  • Data on carepartner mental health, family conflict, and survivor function are being collected.

Conclusions:

  • The CARE-CITE study assesses a family-integrated approach for home-based stroke rehabilitation.
  • Findings will lay the groundwork for future research on family involvement in rehabilitation.
  • This research aims to develop models promoting family participation in the recovery process.