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Reframing Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS): Biological Basis of Disease and Recommendations for Supporting Patients.

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Turning a Corner in ME/CFS Research.

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Advances in ME/CFS: Past, Present, and Future.

Kenneth J Friedman1

  • 1Retired, Plantation, FL, United States.

Frontiers in Pediatrics
|May 7, 2019
PubMed
Summary

Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) remains a poorly understood and stigmatized illness. Achieving comparable treatment and care to HIV/AIDS requires significant research advancements.

Area of Science:

  • Neurology
  • Immunology
  • Public Health

Background:

  • Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) has a history dating back to 1934.
  • The exact cause and diagnostic methods for ME/CFS are still unknown, leading to misperceptions and stigmatization as a psychosomatic illness.
  • A 2015 report highlighted the significant impact of ME/CFS, affecting up to 2.5 million Americans and criticizing government inaction.

Purpose of the Study:

  • To compare the historical and current status of ME/CFS with HIV/AIDS.
  • To outline necessary advancements for ME/CFS to reach the treatment and care standards of HIV/AIDS.

Main Methods:

  • Historical comparison of disease progression and patient care.
  • Analysis of current research and clinical management of ME/CFS.
Keywords:
HISTORYHIV/AIDSME/CFScomparisonpatient careresearch

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  • Identification of key research and healthcare milestones needed for ME/CFS.

    • Main Results:

    • ME/CFS is considered by clinicians to be more devastating than HIV/AIDS.
    • Despite affecting millions, ME/CFS research and patient support have been historically inadequate.
    • Significant gaps exist in understanding ME/CFS pathology and developing routine diagnostic tests.

    Conclusions:

    • ME/CFS requires urgent and increased research to understand its pathological nature.
    • Elevating ME/CFS requires overcoming stigmatization and achieving parity with diseases like HIV/AIDS in terms of research funding and patient care.
    • Advancements in diagnostics, treatment, and public health support are crucial for ME/CFS patients.