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Palliative Care in the Pediatric Emergency Department: Findings From a Qualitative Study
Anne-Josée Côté1, Antoine Payot2, Nathalie Gaucher3
1Department of Pediatrics, Montreal Children's Hospital, Montreal, Quebec, Canada.
Insights
Pediatric palliative care in the emergency department (ED) faces challenges due to ED culture and lack of care continuity. Addressing these can improve care for children with medical complexity.
Area of Science:
- Pediatric Palliative Care
- Emergency Medicine
- Complex Care
Background:
- Children with medical complexity are a vulnerable population frequently requiring pediatric palliative care.
- The role of the emergency department (ED) in caring for these children and their families is not well understood.
Purpose of the Study:
- To explore healthcare professionals' perspectives on providing pediatric palliative care within the ED setting.
Main Methods:
- Semistructured focus groups were conducted with healthcare professionals from pediatric emergency medicine, palliative care, complex care, and intensive care.
- Data were transcribed and analyzed using thematic analysis and theoretic sampling.
Main Results:
- Barriers to pediatric palliative care in the ED include its unique culture, emotional responses of staff, and lack of care continuity.
- Recommendations for ED professionals include evaluating clinical situations, contacting existing care teams, respecting family preferences, managing symptoms, and fostering a supportive environment.
- Improved inter-team communication is crucial for patient flow and care quality.
Conclusions:
- Despite differing perspectives, barriers to high-quality emergency pediatric palliative care can be overcome.
- Enhancing care requires addressing ED-specific challenges and improving coordination with external healthcare teams.
Study Objective:
Children with medical complexity represent a fragile population and account for the majority of patients followed in pediatric palliative care. Little is known in regard to the role of the emergency department (ED) in caring for the families of children with medical complexity.
Methods:
Semistructured focus groups were held with health care professionals from pediatric emergency medicine, palliative care, complex care, and intensive care to explore their perspective on pediatric palliative care in the ED. Data were transcribed and analyzed with NVivo software, and thematic analysis and theoretic sampling were performed.
Results:
From January to October 2016, 58 participants were interviewed. Difficulties providing pediatric palliative care in the ED are related on the one hand to characteristics specific to the ED, such as its culture and its health care professionals' strong emotional responses when caring for children with medical complexity, and on the other hand to factors extrinsic to the ED; mainly, lack of continuity of care. For critically ill children with unknown goals of care and potential for end of life, professionals in the ED should evaluate the clinical situation, contact known health care teams, remain open to families' preferences, alleviate distressing symptoms, and create a caring environment. Communication between teams is targeted by health care professionals to facilitate and improve patient flow and care.
Conclusion:
Although perspectives differ in regard to how to provide care for pediatric palliative care patients in the ED, several barriers to providing high-quality emergency pediatric palliative care can be overcome.
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