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[Online support groups for patients with prostate cancer]
Johannes Huber1, Christian Thomas1, Philipp Karschuck1
1Universitätsklinikum Carl Gustav Carus Dresden, Klinik und Poliklinik für Urologie, Dresden.
Aktuelle Urologie
|May 9, 2019
Summary
Online prostate cancer support groups provide valuable information and emotional support, influencing treatment decisions for many patients. Users reported higher rates of anxiety and depression compared to the general population.
Area of Science:
- Oncology
- Digital Health
- Patient Support
Background:
- Online support groups facilitate experience, advice, and information exchange among patients.
- The Bundesverband Prostatakrebs Selbsthilfe e.V. (BPS) hosts the largest German-language online forum for prostate cancer patients.
Purpose of the Study:
- To examine the content, language, interaction, and impact of the BPS online support group.
- To compare online support with traditional face-to-face groups and assess usage by family members.
Main Methods:
- Content analysis of the online forum.
- Evaluation of language use and user interaction patterns.
- Assessment of influence on treatment decisions and comparison with face-to-face support.
Main Results:
- Online communication is tentative, with users valuing emotional support alongside information.
- 29% of patients changed their initial treatment decisions due to forum use.
- Users exhibited higher anxiety and depression rates; family members reported higher distress and patient metastasis.
Conclusions:
- Online support groups are positively received, offering crucial information and emotional support.
- These platforms significantly influence primary treatment decisions, shaping prostate cancer patient care.
- Users of online support groups tend to be younger with higher education and income than face-to-face group participants.
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