Subjective well-being in patients with pemphigus: a path analysis
Ariel Mitev1, Fanni Rencz2,3, Béla Tamási4
1Department of Marketing, Corvinus University of Budapest, Fővám tér 8, Budapest, 1093, Hungary.
Summary
Pemphigus patients
Area of Science:
- Dermatology
- Autoimmune Diseases
- Psychology
Background:
- Pemphigus is a severe autoimmune blistering disease impacting skin and mucosa.
- It significantly reduces patients' health-related quality of life (HRQoL).
- No prior studies assessed life satisfaction in pemphigus patients.
Purpose of the Study:
- Evaluate life satisfaction in pemphigus patients.
- Analyze the relationship between life satisfaction, disease severity, and HRQoL.
- Establish a holistic assessment for pemphigus care.
Main Methods:
- Cross-sectional survey of 77 pemphigus patients.
- Measured life satisfaction using the Satisfaction with Life Scale (SWLS).
- Assessed HRQoL (DLQI, EQ-5D-5L) and disease severity (ABSIS).
Main Results:
- Life satisfaction was independent of demographic and disease factors.
- No direct link found between Autoimmune Bullous Skin Disorder Intensity Score (ABSIS) and SWLS.
- An indirect relationship was confirmed: ABSIS → DLQI → EQ-5D-5L → SWLS.
Conclusions:
- Life satisfaction (SWLS) is a valuable addition to assessing pemphigus patients.
- Integrate subjective well-being measures for comprehensive patient evaluation.
- Optimize pemphigus care by considering disease severity, HRQoL, and life satisfaction.
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