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PaTH to partnership in stakeholder-engaged research: A framework for stakeholder engagement in the PaTH to Health
Jennifer M Poger1, Hsin-Chieh Yeh2, Cindy L Bryce3
1Penn State College of Medicine, Department of Medicine, Hershey, PA, 17033, USA.
Abstract:
Engaging a diverse stakeholder group, including patients, clinicians, policy makers, and leadership from national professional organizations as partners in research supports the pursuit of patient-centered outcomes. Utilizing the Patient-Centered Outcomes Research (PCOR) Engagement Principles and applying adult learning theories to training opportunities can enhance stakeholder-investigator collaborations. Regularly scheduled study meetings with stakeholders can help streamline communication, offer a platform for stakeholder voices to be shared, and increase study productivity. Ongoing engagement evaluations provide an important opportunity to assess engagement activities and improve processes moving forward. Benefits of a robust patient partner and stakeholder body extend beyond the study's objectives and translate into the creation of larger networks where resources are shared and patient-centeredness is enhanced.
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