Related Experiment Video
Updated: Jan 24, 2026

Involving Individuals with Developmental Language Disorder and Their Parents/Carers in Research Priority Setting
Published on: June 6, 2020
Exploring the Perspectives of Parents and Siblings Toward Future Planning for Individuals With Intellectual and
Chung Eun Lee1, Meghan M Burke1, Claire R Stelter1
1Chung eun Lee, Meghan M. Burke, and Claire R. Stelter, Department of Special Education, University of Illinois at Urbana-Champaign.
Abstract:
Parents often provide the bulk of caregiving supports for their adult offspring with intellectual and developmental disabilities (IDD). Given the longer lives of people with IDD, however, such caregiving roles may transition to siblings. Thus, it is critical to conduct future planning among family members (e.g., parents, siblings) to prepare for the transition of caregiving roles. To this end, we interviewed 10 parent-sibling dyads (N = 20) of people with IDD about long-term planning. Both parents and siblings reported family-related and systemic barriers to developing future plans. Siblings (unlike parents) reported wanting more communication among family members about planning. Implications for future research and practice are discussed.
Related Concept Videos
Intellectual Disability
Parental Care
Relationship with Other Adult Family Members and Siblings
Learning Disabilities
Dyslexia
Dyslexia is a...
Parenting Styles
Authoritarian Parenting
This style is strict and controlling, with little room for open dialogue. Authoritarian parents demand obedience and often enforce rules with minimal warmth. Children raised this way may lack social skills and initiative, usually comparing themselves to others unfavorably.
Authoritative...
Relationship with Parents: Attachment

