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The increasing complexity of the core outcomes landscape
Rachael M Moloney1, Donna A Messner1, Sean R Tunis1
1Center for Medical Technology Policy, Baltimore, MD, USA.
Journal of Clinical Epidemiology
|May 27, 2019
Summary
To improve clinical research, core outcome sets are needed. Current fragmented efforts create redundancies, highlighting the need for better collaboration and aligned standards across healthcare sectors.
Area of Science:
- Health Services Research
- Clinical Research Methodology
- Health Outcomes Research
Background:
- Growing recognition of the need for common, relevant outcomes to enhance decision-making quality across diverse healthcare sectors.
- Numerous projects and organizations are developing standardized outcomes and measures within specific fields.
- Lack of interoperability between standardized outcome sets developed in siloed initiatives.
Purpose of the Study:
- Identify strategies to increase the adoption of core outcome sets in clinical research.
- Address the challenges posed by fragmented development of standardized outcomes.
- Promote alignment and collaboration among different initiatives.
Main Methods:
- Literature review of current initiatives in outcome set development.
- Analysis of trends in healthcare sectors regarding outcome standardization.
- Identification of potential redundancies and resource inefficiencies.
Main Results:
- A proliferation of siloed initiatives developing standardized outcomes for specific fields.
- Limited transferability of developed outcome sets across different sectors (e.g., research to quality of care).
- Potential for confusion, redundancy, and waste of financial and intellectual resources.
Conclusions:
- Enhanced communication and collaboration among initiatives are crucial.
- Deliberate alignment of initiative scopes is needed for greater impact.
- A future paradigm requires standards that align across contexts where possible and differ transparently when necessary.
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