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How Is the Caregiver Doing? Capturing Caregivers' Experiences With a Reflective Toolkit
Lilian Bosch1, Marije Kanis1, Julia Dunn2
1Amsterdam University of Applied Sciences, Amsterdam, Netherlands.
The Co-Care-KIT, a reflective toolkit, enhances informal caregivers' well-being by increasing self-awareness and enabling the sharing of their caregiving experiences. This toolkit supports caregivers in understanding their daily needs and emotional journeys.
Area of Science:
- Human-Computer Interaction
- Caregiver Support Technologies
- Qualitative Research Methods
Background:
- Home-based informal caregivers face diverse and often unacknowledged experiences.
- The Co-Care-KIT (Coordinated Caregiving Intervention Toolkit) is a novel reflective tool designed for these caregivers.
- It aims to provide deeper insights into the daily realities of informal caregiving.
Purpose of the Study:
- To evaluate the effectiveness of the Co-Care-KIT in capturing and reflecting on informal caregivers' daily experiences.
- To assess the toolkit's components: a custom journal, photography-based experience sampling, and heart rate tracking.
- To understand how in situ data collection and reflection impact caregiver well-being.
Main Methods:
- A 2-week field study involving 7 informal caregivers.
- Utilized the Co-Care-KIT for in situ data collection of emotional experiences.
- Employed collaborative dialogue between researchers and caregivers for data analysis.
Main Results:
- The toolkit significantly increased caregivers' self-awareness regarding their well-being.
- Caregivers felt empowered to share their caregiving identity and experiences.
- The Co-Care-KIT facilitated the capture of positive experiences and provided reassurance about mental health.
Conclusions:
- The Co-Care-KIT, through experience capture and collaborative reflection, fosters a novel understanding of caregivers' daily needs.
- It offers a valuable approach to supporting the emotional well-being of informal caregivers.
- This research highlights the potential of technology-mediated reflection in caregiver support.
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