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Updated: Jan 24, 2026

Assessing the Coherence of Parents' Short Narratives Regarding their Child Using the Five-Minute Speech Sample Procedure
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Assessing the Coherence of Parents' Short Narratives Regarding their Child Using the Five-Minute Speech Sample Procedure

Published on: September 19, 2019

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Mixed methods study exploring parent engagement in child health research in British Columbia

Jennifer Smith1, Ian Pike1,2,3, Mariana Brussoni1,3,4

  • 1BC Injury Research and Prevention Unit, Vancouver, British Columbia, Canada.

BMJ Open
|June 3, 2019
PubMed

Insights

Parents are interested in engaging in child health research and value online platforms. They prefer to help identify problems, develop research questions, and share results, but privacy is a key concern.

Area of Science:

  • Child health research
  • Patient-oriented research
  • Knowledge translation platforms

Background:

  • Engaging patients and families in research is crucial for relevance and impact.
  • British Columbia Children's Hospital (BCCH) aims to enhance collaboration between patients, families, practitioners, and researchers.
  • An interactive platform, Child-Sized KT, was proposed to facilitate this collaboration.

Purpose of the Study:

  • To explore parent perspectives on engaging in patient-oriented research.
  • To assess parent interest in and concerns about using an interactive knowledge translation platform (Child-Sized KT).
  • To understand parent preferences for involvement in different research stages.

Main Methods:

  • An explanatory sequential mixed methods design was employed over one year.
  • An online survey was completed by over 500 parents across British Columbia, with 102 parents who had accessed care at BCCH.
  • Two focus groups were conducted with parents in the Vancouver area to explore survey themes.

Main Results:

  • Parents expressed strong interest in participating in research at BCCH.
  • Parents perceived value in contributing to all research stages, particularly problem identification, question development, and result dissemination.
  • Online participation was preferred, but concerns about child data privacy were significant.

Conclusions:

  • Parents recognize the value of their involvement in all aspects of child health research.
  • The Child-Sized KT platform has the potential to foster meaningful stakeholder engagement in child health research.
  • The platform should prioritize a customized user experience and robust data privacy measures.
Abstract

Keywords:
knowledge translationpaediatricspatient-oriented research

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