Genetic testing and eHealth usage among Deaf women

Area of Science:

• Health Communication
• Genetics
• Public Health

Background:

• eHealth platforms are increasingly providing information on cancer and genetic testing in American Sign Language (ASL).
• Understanding genetic testing awareness among Deaf women is crucial for early cancer risk assessment.

Purpose of the Study:

• To compare genetic testing awareness and information-seeking behaviors between Deaf and hearing women.
• To identify factors associated with genetic testing awareness among Deaf women.
• To highlight the role of eHealth accessibility in reducing knowledge gaps.

Main Methods:

• Primary data collected from Deaf women via the HINTS-ASL survey (Nov 2016-Apr 2018).
• Secondary data from hearing women utilized from NCI's HINTS 5 Cycle 1 survey (2017).
• Focus on awareness of DNA testing and BRCA 1/2 genetic testing.

Main Results:

• 63% of Deaf women had heard of DNA testing, with higher likelihood among young adults, college graduates, and those with a family cancer history.
• Deaf women who knew about genetic testing were more likely to use social media for health information and watch health videos compared to hearing women.
• A knowledge gap in genetic testing exists, potentially impacting early cancer risk identification for some Deaf women.

Conclusions:

• Accessible eHealth platforms in ASL and clear text are vital for reducing disparities in genetic testing knowledge.
• Targeted interventions are needed to ensure Deaf women can utilize genetic testing for early detection of hereditary cancer risks.
• Increased use of social media for health information by Deaf women presents an opportunity for targeted outreach.