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Health, functionality, and social support in families with a child with a neurodevelopmental disorder - a pilot study

Diana Cavonius-Rintahaka1,2, Anna Liisa Aho3, Arja Voutilainen2

  • 1Gillberg Neuropsychiatry Centre, Institute of Neuroscience and Physiology, University of Gothenburg, Sahlgrenska Academy, Gothenburg, Sweden.

Neuropsychiatric Disease and Treatment
|June 14, 2019
PubMed

Insights

Parents of children with neurodevelopmental disorders (NDD) report lower social support but similar family health and functionality, regardless of gender. Family functioning is linked to overall family health in these families.

Area of Science:

  • Neuroscience
  • Psychology
  • Family Studies

Background:

  • Parental stress is elevated in families with neurodevelopmental disorders (NDD).
  • Parental psychosocial factors impact child development and behavior.
  • Limited understanding exists regarding family functioning, health, and support experiences for parents of children with NDD, and potential gender differences.

Purpose of the Study:

  • To investigate family functionality, health, and social support experiences in parents of children with NDD.
  • To explore potential differences in these experiences between mothers and fathers.
  • To assess the reliability of the FAmily Functionality, HEalth, and Social support (FAFHES) questionnaire.

Main Methods:

  • Utilized a modified FAmily Functionality, HEalth, and Social support (FAFHES) questionnaire.
  • Included open-ended questions for qualitative insights.
  • Conducted a three-month test-retest reliability study of the FAFHES questionnaire.

Main Results:

  • Parents reported lower social support compared to family functionality and health.
  • A positive correlation was observed between family functionality and family health.
  • No significant differences were found in the experiences of mothers and fathers.
  • The FAFHES questionnaire demonstrated good test-retest reliability over three months.

Conclusions:

  • Family functionality is interconnected with family health in families raising a child with NDD.
  • Mothers and fathers share similar perceptions of their family's health, functionality, and social support.
  • The findings highlight the importance of social support while underscoring the robust connection between family functioning and health.

Keywords:
family functionalityfamily healthneurodevelopmental disordersparentssocial support

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