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Comprehensive Autopsy Program for Individuals with Multiple Sclerosis
Published on: July 19, 2019
The evaluation of an online mindfulness program for people with multiple sclerosis: study protocol
Amy-Lee Sesel1, Louise Sharpe2, Heidi N Beadnall3,4
1School of Psychology, University of Sydney, Sydney, NSW, 2006, Australia.
This study investigates an online mindfulness-based intervention for multiple sclerosis, assessing its effectiveness in managing depression, anxiety, fatigue, and pain. The trial aims to determine if this digital approach improves quality of life for individuals with MS.
Area of Science:
- Neurology
- Psychiatry
- Digital Health
Background:
- Multiple sclerosis (MS) presents significant psychosocial challenges, including low mood, anxiety, fatigue, and pain, impacting quality of life.
- Internet-based interventions, particularly mindfulness-based approaches, show promise for chronic illness management.
- Large-scale randomized controlled trials (RCTs) for online mindfulness-based interventions (MBIs) in people with MS (PwMS) are lacking.
Purpose of the Study:
- To evaluate the efficacy of an online mindfulness-based intervention (MBI) for people with multiple sclerosis (PwMS).
- To assess the impact of the online MBI on depression, anxiety, fatigue, pain, and health-related quality of life in PwMS.
Main Methods:
- A randomized controlled trial (RCT) design comparing an online MBI group with a waitlist control group.
- Participants (PwMS) were assessed for history of recurrent depressive disorder.
- Primary outcome: depression severity (Centre for Epidemiology Studies Depression Scale). Secondary outcomes: anxiety, fatigue, pain, quality of life.
- Assessments conducted pre-treatment, post-treatment, and at 3- and 6-month follow-ups.
- The online MBI was co-designed with end-users (19 PwMS) and reviewed by experts and patients.
Main Results:
- This section is to be filled once results are available.
Conclusions:
- Online MBIs represent a novel approach to managing the complex psychosocial symptoms of MS.
- This trial will provide crucial evidence on the efficacy of delivering MBIs online for PwMS.
- Understanding the benefits of online MBIs across various symptom domains is essential for improving patient care.
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