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Needs of parents of very preterm infants in Neonatal Intensive Care Units: A mixed methods study

Mariana Amorim1, Elisabete Alves2, Michelle Kelly-Irving3

  • 1EPIUnit - Instituto de Saúde Pública, Universidade do Porto, Portugal; Departamento de Ciências da Saúde Pública e Forenses e Educação Médica, Faculdade de Medicina, Universidade do Porto, Portugal; Global Public Health Doctoral Programme, Portugal.

Intensive & Critical Care Nursing
|June 18, 2019
PubMed

Insights

Parents of infants in Neonatal Intensive Care Units have varied needs based on socioeconomic factors and infant characteristics. Addressing these needs requires family-centered policies and tailored support for mothers and fathers.

Area of Science:

  • Neonatal care research
  • Parental support systems
  • Socioeconomic determinants in healthcare

Background:

  • Neonatal Intensive Care Units (NICUs) present unique challenges for parents.
  • Understanding parental needs is crucial for integrated family-centered care.
  • Socioeconomic position, obstetric history, and infant characteristics can influence parental experiences.

Purpose of the Study:

  • To investigate the needs of parents with very preterm infants hospitalized in NICUs.
  • To analyze these needs in relation to socioeconomic position, obstetric history, and infant characteristics.
  • To inform the development of supportive healthcare services.

Main Methods:

  • A sequential explanatory mixed-methods study was conducted.
  • Quantitative data collected via questionnaires from 118 mothers and 89 fathers.
  • Qualitative data gathered through semi-structured interviews with 26 couples post-discharge.

Main Results:

  • Mothers reported higher information needs, influenced by age and education; fathers' needs were linked to prior children.
  • Common needs across genders included assurance and proximity.
  • Qualitative data revealed needs for governmental instrumental support, psychological/social work assistance, enhanced privacy, and peer/professional mediation for information.

Conclusions:

  • Family-friendly and gender-equality policies are vital for integrated NICU care.
  • Developing sensitive frameworks to assess parental needs is essential.
  • Consideration of socioeconomic factors, reproductive history, privacy, and emotional support is recommended for NICU services.
Abstract

Keywords:
Family-integrated careIntensive Care UnitsNeeds AssessmentNeonatalParents

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