Assistive technology based on client-centered for occupational performance in neuromuscular conditions

Area of Science:

• Rehabilitation Medicine
• Occupational Therapy
• Assistive Technology

Background:

• Understanding patient-perceived functioning and environmental factors is vital for individuals with neuromuscular disorders (NMD).
• Occupational performance and independence are significantly impacted by NMD.
• Identifying needs and available support is essential for managing NMD.

Purpose of the Study:

• To profile the occupational performance and identify the needs of individuals with NMD.
• To determine the necessary support resources, including assistive technologies (AT), adjustments, and caregiver support, to enhance independence in individuals with NMD.

Main Methods:

• A cross-sectional study involving 24 participants with NMD.
• Utilized the Functional Independence Measure (FIM), a home accessibility checklist, and a specific questionnaire.
• Collected data on demographics, functional independence, AT use, and home environment.

Main Results:

• The study sample comprised 14 women (58.3%) and 10 men (41.7%).
• Participants exhibited a moderate level of dependence, with a mean FIM motor score of 61.7 (SD=17.2).
• Wheelchairs were the most common AT (70.8%), and 87.5% of homes had architectural barriers.

Conclusions:

• Concise assessment of independence needs based on occupational performance is required for individuals with NMD.
• Prescribing appropriate resources, including AT and caregiver support, is essential for improving independence.
• Integrating these assessments into healthcare programs, including caregiver support, is recommended.