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Caregivers' Perceptions and Hospital Experience After a Brief Resolved Unexplained Event: A Qualitative Study
Adrita Khan1, Sowdhamini S Wallace2, Esther M Sampayo3
1Sections of Pediatric Hospital Medicine and aak2214@cumc.columbia.edu.
Hospital Pediatrics
|June 26, 2019
Summary
Caregivers of infants hospitalized for brief resolved unexplained events (BRUE) felt reassured by hospital care but struggled with diagnostic uncertainty. Understanding these experiences can improve hospital stays and discharge planning.
Area of Science:
- Pediatrics
- Qualitative Research
Background:
- The American Academy of Pediatrics (AAP) published guidelines for brief resolved unexplained events (BRUE) but identified knowledge gaps in caregiver satisfaction and education.
- Caregiver experience, anxiety, and educational strategies are crucial for improving patient outcomes in BRUE cases.
Purpose of the Study:
- To explore caregivers' experiences during infant hospitalization for BRUE.
- To understand caregiver perceptions of the hospital stay, BRUE diagnosis, and discharge readiness.
Main Methods:
- A qualitative study involving semistructured interviews with caregivers of infants (0-12 months) admitted for BRUE.
- Interviews were conducted within 24 hours of discharge and analyzed using thematic consensus coding.
Main Results:
- Eighteen caregivers of 13 infants participated; none met AAP low-risk criteria.
- Parents reported reassurance from hospital monitoring and staff support.
- Parents experienced anxiety due to diagnostic uncertainty and the unexplainable nature of BRUE.
Conclusions:
- Hospital monitoring offers reassurance but does not eliminate caregiver anxiety regarding BRUE diagnosis.
- Caregiver perspectives are essential for refining hospital strategies to enhance patient experience and discharge preparedness.
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