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Cross-Network Directory Service: Infrastructure to enable collaborations across distributed research networks
Jessica M Malenfant1, Jenny Hochstadt1, Bridget Nolan1
1Department of Population Medicine Harvard Pilgrim Health Care Institute Boston Massachusetts.
Learning Health Systems
|June 28, 2019
Summary
A new open-source tool, the Cross-Network Directory Service (CNDS), connects disparate health data networks. This enables seamless data sharing and querying across multiple research and policy platforms.
Area of Science:
- Health Informatics
- Distributed Systems
- Data Networking
Background:
- Large-scale distributed health data networks operate in silos, hindering research and policy efforts.
- Existing infrastructure lacks interoperability, creating significant barriers to data sharing.
- This disconnect impedes comprehensive analysis of healthcare data.
Purpose of the Study:
- To design and implement an open-source tool, the Cross-Network Directory Service (CNDS).
- To address the disconnection issues plaguing distributed health data networks.
- To facilitate seamless data and resource sharing across multiple networks.
Main Methods:
- Stakeholder engagement identified essential services for a Cross-Directory Service.
- CNDS was developed and implemented using PCORnet and Sentinel network instances.
- Testing was conducted by participating data partners to validate functionality.
Main Results:
- Developed open-source web services for registration, discovery, communication, and governance.
- Implemented a robust, extensible metadata model supporting unlimited fields without further development.
- Programmatically generated user interfaces based on the metadata model.
Conclusions:
- The CNDS pilot successfully gathered requirements and built a software application for cross-network data sharing.
- Testing by Sentinel and PCORnet partners confirmed successful metadata entry and cross-network querying.
- CNDS integrates disparate health data networks, allowing participation in multiple networks and resource sharing.
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