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Embracing Asymmetry and Humility in the Face of Disability
The Hastings Center Report
|July 4, 2019
Summary
This study introduces "relational potential" as a new ethical standard for life-sustaining treatment decisions in children with profound cognitive disabilities, emphasizing care and acknowledging relational asymmetries.
Area of Science:
- Bioethics
- Pediatric Care
- Disability Studies
Background:
- Existing standards for life-sustaining treatment decisions for children with profound cognitive disabilities are insufficient.
- An ethics of care approach is necessary for navigating complex pediatric ethical dilemmas.
Purpose of the Study:
- To propose
Main Methods:
- Conceptual analysis of ethical frameworks.
- Exploration of relational dynamics in clinical decision-making.
Main Results:
- The concept of "relational potential" offers a new standard for ethical decision-making.
- Acknowledging asymmetries between clinicians, parents, and children is crucial.
Conclusions:
- Integrating relational potential and an ethics of care enhances decision-making for children with profound cognitive disabilities.
- Recognizing and embracing relational asymmetries fosters humility and compassionate care in disability contexts.
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