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Case ascertainment in active paediatric surveillance systems: a report from the British Paediatric Surveillance Unit

Richard M Lynn1,2, Richard Reading3,

  • 1Institute of Child Health, University College London Research Department of Epidemiology and Public Health, London, UK.

Archives of Disease in Childhood
|July 5, 2019
PubMed

Insights

The British Paediatric Surveillance Unit (BPSU) found that the completeness of rare pediatric condition surveillance varied significantly (49-94%). Recommendations are provided to improve case finding for public health.

Area of Science:

  • Epidemiology
  • Public Health Surveillance
  • Pediatrics

Background:

  • Accurate incidence estimates for rare pediatric conditions are crucial for public health.
  • The British Paediatric Surveillance Unit (BPSU) uses active surveillance for case finding.
  • Complete ascertainment is essential for reliable incidence data.

Purpose of the Study:

  • To review the completeness of ascertainment in recent BPSU surveillance studies.
  • To identify factors influencing ascertainment completeness.
  • To provide recommendations for improving ascertainment in active surveillance.

Main Methods:

  • Systematic review of evidence on ascertainment completeness in BPSU studies.
  • Analysis of factors affecting case finding.
  • Categorization of barriers and facilitators.

Main Results:

  • Ascertainment completeness varied widely, ranging from 49% to 94% across studies.
  • Identified factors influencing ascertainment included condition characteristics, study methods, team factors, and system infrastructure.
  • These figures represent upper estimates of completeness.

Conclusions:

  • Ascertainment completeness in BPSU studies is variable and requires improvement.
  • Addressing identified barriers and leveraging facilitators can enhance surveillance accuracy.
  • Implementing recommendations is key to ensuring high ascertainment levels in future studies.

Keywords:
BPSUcase ascertainmentdisease surveillanceepidemiologygeneral paediatrics

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