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Participation and autonomy five years after stroke: A longitudinal observational study
Annie Palstam1, Astrid Sjödin1, Katharina Stibrant Sunnerhagen1
1Department of Clinical Neuroscience, Institute of Neuroscience and Physiology, Sahlgrenska Academy, University of Gothenburg, Gothenburg, Sweden.
Plos One
|July 9, 2019
Summary
Five years post-stroke, individuals experience significant limitations in participation and autonomy, particularly in outdoor activities, work, and social life. Depression and stroke severity contribute to these restrictions, impacting mobility and leisure.
Area of Science:
- Neurology
- Rehabilitation Medicine
- Public Health
Background:
- Stroke is a leading cause of long-term disability globally.
- Understanding long-term participation and autonomy post-stroke is crucial for effective rehabilitation.
Purpose of the Study:
- To evaluate participation and autonomy five years after stroke.
- To identify factors associated with restrictions in participation and autonomy.
Main Methods:
- A five-year follow-up survey study of first-time stroke patients.
- Utilized the Impact of Participation and Autonomy-questionnaire (IPA-E).
- Employed logistic regression to analyze factors associated with participation restrictions.
Main Results:
- Participation restrictions were most prominent in Autonomy Outdoors, Work/Education, and Social Life domains.
- Severe stroke, older age, and female sex predicted participation restrictions.
- Depression partially explained participation restrictions; mobility and leisure were most affected.
Conclusions:
- Five years after stroke, participation and autonomy remain significantly restricted.
- Restrictions are most severe in areas demanding high physical, social, and cognitive abilities.
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