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Analysis of the caregiver burden associated with Sanfilippo syndrome type B: panel recommendations based on

Elsa Shapiro1,2, Charles Marques Lourenço3, Neslihan Onenli Mungan4

  • 1Shapiro Neuropsychology Consulting, LLC, 820 NW 12th Avenue, Portland, OR, 97209, USA. eshapiro@shapironeuropsych.com.

Orphanet Journal of Rare Diseases
|July 10, 2019
PubMed
Abstract

Keywords:
Burden of diseaseCaregiverQuality of lifeSanfilippo syndrome

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