Engaging parent-child dyad and healthcare provider stakeholders in a patient-centered comparative effectiveness study

Area of Science:

• Pediatric Health Research
• Patient and Community Engagement
• Comparative Effectiveness Research

Background:

• Youth experiencing nonintentional injuries often require support for psychosocial health.
• Comparative effectiveness research (CER) is crucial for evaluating interventions in pediatric populations.
• Engaging diverse stakeholders is vital for successful clinical research implementation.

Purpose of the Study:

• To describe engagement activities in a CER study for youth psychosocial health.
• To gather stakeholder input for optimizing study processes and outcomes.
• To identify future directions for patient-engaged research in pediatric injury.

Main Methods:

• Engaged institutional, community, and patient stakeholders across four children's hospitals.
• Utilized consultation meetings, individual interviews, and collaborative meetings for feedback.
• Conducted 67 distinct engagement activities to inform study design and implementation.

Main Results:

• Obtained valuable feedback to enhance participant recruitment, retention, and ongoing engagement.
• Identified key strategies for improving the effectiveness of psychosocial health interventions.
• Dissemination of interventions to school and healthcare settings was prioritized.

Conclusions:

• Diverse engagement methods effectively involved patient and professional stakeholders.
• Stakeholder input provided critical recommendations for improving study engagement and retention.
• Future research should focus on patient-engaged CER with adaptable intervention delivery formats.