Pediatric cholestatic liver disease: Successful transition of care
Praveen Kc Selvakumar1, Vera Hupertz1,2, Naveen Mittal3
1Department of Pediatric Gastroenterology and Hepatology, Cleveland Clinic, Cleveland, OH, USA.
Insights
Adult primary care providers face unique challenges caring for young adults with childhood-onset liver disease or pediatric liver transplants. Successful transition requires formal models and multidisciplinary teams for optimal patient outcomes.
Area of Science:
- Hepatology
- Pediatric Gastroenterology
- Adult Primary Care
Background:
- Increasing survival of pediatric liver disease patients into adulthood.
- Growing population of adult patients with history of childhood-onset liver conditions.
- Unique healthcare needs of young adults with pediatric liver disease and transplant recipients.
Purpose of the Study:
- Highlight challenges in adult primary care for young adults with pediatric liver disease.
- Emphasize the distinct needs of this patient cohort.
- Advocate for structured transition models and multidisciplinary care.
Main Methods:
- Review of current literature on pediatric liver disease transition.
- Analysis of unique evaluation, monitoring, and treatment strategies.
- Identification of common complications and comorbidities in this population.
Main Results:
- Adult primary care providers require specialized knowledge for this cohort.
- Pediatric liver disease survivors present complex management needs.
- Existing transition protocols may be insufficient.
Conclusions:
- A formal transitional model is critical for pediatric liver disease survivors.
- Multidisciplinary teams are essential for effective adult care integration.
- Improved transition strategies will enhance long-term health outcomes.
Abstract:
With recent medical advances, more patients with childhood-onset liver disease and more pediatric liver transplant recipients are surviving into adulthood, generating distinctive challenges to adult primary care providers. Young adults with pediatric liver disease are a unique cohort of patients with different evaluation and monitoring strategies, treatment, complications, and comorbidities. This creates a critical need for successful transition of these patients into adult care, with incorporation of a formal transitional model and multidisciplinary team.
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