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Palliative care in pediatric heart failure and transplantation

Beth D Kaufman1, Harvey J Cohen

  • 1Department of Pediatrics, School of Medicine, Stanford University, Stanford, California, USA.

Current Opinion in Pediatrics
|July 24, 2019
PubMed

Insights

Palliative care is crucial for children with advanced heart failure, offering symptom management and improved quality of life. Early integration by cardiology teams and specialized training are recommended for better patient outcomes.

Area of Science:

  • Pediatric Cardiology
  • Palliative Medicine
  • Advanced Heart Disease

Background:

  • Advanced heart failure in children presents complex clinical challenges and prognostic uncertainty.
  • Pediatric heart failure patients often experience intensive end-of-life care in ICUs.
  • Palliative care integration early in the disease trajectory is increasingly advocated.

Purpose of the Study:

  • To review the current role of palliative care in supporting pediatric patients with advanced heart failure.
  • To examine the impact of palliative interventions on quality of life in this population.

Main Methods:

  • Literature review of current research and clinical practices.
  • Analysis of studies advocating for early palliative care integration.
  • Examination of consensus on palliative care training in pediatric cardiology.

Main Results:

  • Palliative care principles like symptom management, prognosis communication, and advanced care planning are vital.
  • Collaboration between primary cardiology teams and pediatric palliative care specialists is recommended.
  • Incorporating palliative care training into pediatric advanced heart disease programs is essential.

Conclusions:

  • Palliative care is a critical element in managing pediatric heart failure.
  • Further research is needed to optimize palliative care interventions for children with advanced heart disease.
  • Effective palliative care provision is a key component of specialist training.
Abstract

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